FSMA


Families of Spinal Muscular Atrophy funds and directs the leading SMA research programs to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $50 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:


  • Funding and advancing a comprehensive research program
  • Supporting SMA families through networking, information and services
  • Improving care for all SMA patients
  • Educating health professionals and the public about SMA
  • Enlisting government support for SMA
  • Embracing all touched by SMA in a caring community

Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

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Testimonial


"This app is a great communication vehicle for members and is very convenient to use. It is also a great promotional tool to let our fans know when and where we are playing and best of all, we can sell our music through the app—awesome! ”

Arina Bureeva, Guitarist, Member of
Sacramento Guitar Society